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Tiffany
Jul 30, 20242 min read
Show Notes: 2.17 - Pediatric Hypermobility
This week's episode is all about pediatric hypermobility, the new pgHSD criteria, and how this affects our children.
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Tiffany
Jul 9, 20242 min read
Show Notes: Episode 2.15 - Why Get Diagnosed?
Luna & Shelli discuss some important reasons why a formal diagnosis is worth the process of seeking it.
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Tiffany
Jun 25, 20244 min read
Show Notes: Episode 2.14 - Hypermobile Dudes Part 3: The Conclusion
On this week's episode, Luna and Shelli wrap up their discussion with the Men's hEDS Panel.
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Tiffany
Jun 12, 20242 min read
Show Notes: Episode 2.13 - Patient Advocacy & Insurance
We're back this week with the final segment of our interview with Megan Karonafil to dive deeper into her role as a patient advocate.
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Tiffany
May 29, 20243 min read
Show Notes: Episode 2.12 - Hypermobile Dudes Part 2: An Interview Panel with Three Men with hEDS
Luna and Shelli continue their panel interview discussion on how Hypermobile Ehlers-Danlos Syndrome affects men.
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Tiffany
May 22, 20243 min read
Show Notes: Episode 2.10 - Hypermobile Dudes Part 1: An Interview Panel with Three Men with hEDS
On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects men.
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Tiffany
May 15, 20243 min read
Show Notes: Episode 2.09 - The Conversation With a Patient Advocate Continues
Welcome back to Part 2 of our interview with Megan Karanfil, where we discuss the role of a patient advocate and how they can help patients.
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