Original Air Date: July 31, 2024
Welcome back to Hacking Hypermobility! This week's episode is all about pediatric hypermobility. Shelli and Luna are diving into how hypermobility impacts children and teenagers, the pediatric diagnostic process, and the updated diagnostic criteria that was released in May 2023.
Also, a quick announcement: You can now support the show right here!
Co-Hosts: Luna and Shelli
Disclaimer: The information provided in this podcast episode is for educational purposes only and should not be considered as medical advice. Consult with healthcare professionals for personalized guidance on managing Ehlers-Danlos Syndromes.
Important Takeaways:
Hypermobility is relatively common in children, with up to 30% exhibiting some degree of joint flexibility. The effects can range from asymptomatic to significantly disruptive symptoms affecting daily life.
The impact of hypermobility can vary with a child's developmental stage, and diagnosing PJHS can be complex due to the variability in symptoms and their overlap with other conditions.
Children with PJHS may be at higher risk for developing related conditions such as Ehlers-Danlos Syndrome (EDS), Juvenile Idiopathic Arthritis (JIA), and other connective tissue disorders. Continuous monitoring for additional symptoms and complications is crucial.
Effective management of PJHS involves a multifaceted approach including physical therapy, pain management, and lifestyle adjustments. Support should also address the psychosocial impact, helping children cope with physical limitations and emotional challenges to ensure they can lead active, fulfilling lives.
EPISODE TIMESTAMPS
00:00 - Intro
02:24 - Medical Disclaimer
02:47 - What Is Pediatric Joint Hypermobility Syndrome
05:44 - TL:DR of Hypermobility In Kids
12:35 - What Organizations Are Working On
14:33 - hEDS to PJHS Key Changes
18:03 - Positives to New Pediatric Framework
22:14 - Critical Discussion of the Changes
24:05 - New PJHS Diagnostic Process
32:30 - Resources For Parents
34:00 - Closing
Links to Resources and Topics Mentioned In This Episode
Research & Publications
Pediatric Joint Hypermobility: A Diagnostic Framework and Narrative Review (2023) - View Article
Hypermobility Disorders in Children and Adolescents (2006) - View Article
Hypermobile Ehlers-Danlos Syndrome (2004, Updated 2024) - View Article
Other Information
The Ehlers-Danlos Society Consortium - Visit
The Ehlers-Danlos Society AHEAD Coalition - Visit
EDS Presentation: hEDS in Pediatric Patients - Video
Thank you so much for joining us this week. If you haven't already, please remember to work your magic (Like, Follow, Share, Subscribe, leave a Review) on whichever platform you're joining us on; it truly helps more people find us and it's an easy (and free!) way to help support the podcast.
You can now also support the show by making a one-time donation here, or a monthly contribution through Spotify! Simply go to our show's Spotify page and click "Support This Podcast". Your support will help us reach our goals to improve our recording quality and make other improvements to the podcast.
Every bit helps, and we appreciate your support, follows, ratings, and shares so much! Thank you, Bendy Baddies!
Wishing you happy, healthy hypermobility!
-Tiffany | Assistant Producer
Feel free to email to me with any questions!
Commenti