Original Air Date: July 10, 2024
The Bendy Mommas discuss why we think it’s a smart idea to use your spoons to get diagnosed. We discuss the benefits of the diagnostic journey to have the symptoms of hypermobility evaluated s if you suspect an inherited connective disorder such as the Ehlers-Danlos Syndromes.
If you have any questions or comments for future episodes, please send us a message (voice, audio, or video) at info@hackinghypermobilitty.com. Be sure to give us permission to use your likeness and if you want us to use your name or not.
Co-Hosts: Luna and Shelli
Disclaimer: The information provided in this podcast episode is for educational purposes only and should not be considered as medical advice. Consult with healthcare professionals for personalized guidance on managing Ehlers-Danlos Syndromes.
Important Takeaways:
A proper & timely diagnosis is essential to improving your overall health and quality of life and YOU deserve that!
Some of the benefits include proper health management, avoiding unnecessary and costly tests, and better mental health.
Links to Resources and Topics Mentioned In This Episode
Resources & References
VEDS Movement Article Fluoroquinolones: https://thevedsmovement.org/2019/10/26/fda-statement-fluoroquinolones/
Regulate – A parent’s guide to emotional dysregulation with Dr. James Kustow https://www.youtube.com/watch?v=3HQ1_POPh6U
International Consortium: The Road to 2026: A Path Toward Progress - The Ehlers Danlos Society (ehlers-danlos.com)
Global Learning Conference – EDS and HSD From Head to Toe: https://www.ehlers-danlos.com/events/2024-global-learning-conference/
Management of childbearing with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders: A scoping review and expert co-creation of evidence-based clinical guidelines https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0302401
Previous Episodes Mentioned
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Next week we'll be celebrating our 2 Year Podcast-aversary in Philadelphia at the 2024 Global Learning Conference! If you're going to be there, be sure to let us know, we'd love to say hi. Come back next week, we'll be releasing Part 2 of 'Why Get Diagnosed' a week early as part of our birthday celebration week!
Wishing you happy, healthy hypermobility,
-Tiffany | Assistant Producer
Feel free to email to me with any questions!
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